Cuid-arte. Aprende a vivir con la enfermedad de parkinson.
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2015-06-24
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Jaén: Universidad de Jaén
Resumen
[ES] OBJETIVO: El objetivo de este trabajo es acercar la enfermedad de Parkinson a las personas que la padecen y a sus cuidadores. El Parkinson, una enfermedad neurodegenerativa crónica y progresiva cada vez más extendida en la sociedad en la que vivimos y de la cual apenas hay información fidedigna que pueda ser utilizada por las personas que acaban de ser diagnosticadas con esta enfermedad, para así conocer lo que realmente les pasa y a que se van a tener que enfrentar.
MÉTODO: Debido a una serie de entrevistas realizadas en la asociación de Parkinson de Linares, he llegado a la conclusión que la información que poseen estos pacientes es muy escasa, por lo que hemos decido realizar un manual donde se les explica en qué consiste la enfermedad, los síntomas de esta, los tratamientos y lo más importante para ellos, qué pueden hacer para suplir los problemas y dificultades con los que se van a encontrar en su vida cotidiana.
RESULTADOS: Debido a la falta de tiempo, no hemos podido evaluar la efectividad de este cuadernillo en las personas con Parkinson de la asociación de Linares. Posteriormente seguiremos con el estudio de este cuadernillo en la misma población.
CONCLUSIONES: Es necesario que estos pacientes tengan conocimientos suficientes para poder sobrellevar el reto diario que esta enfermedad les presenta, pero sobre todo para que puedan mejorar su calidad de vida que se ha podido ver comprometida por la enfermedad de Parkinson.
[EN] FACTUAL: The factual of this work is to bring Parkinson's disease to people who suffers this and their caregivers. Parkinson, an increasingly widespread chronic and progressive neurodegenerative disease in the society. Of which there is little reliable information that can be used by people who have just been diagnosed with this disease, in order to know what really happens to them as they will have to face. METHOD: Due to a series of interviews in Parkinson association in Linares, we have concluded that the information which possess these patients is very poor, so we decided to make a manual where it is explained what is the disease, the symptoms of this, treatments and most importantly to them, what they can do to meet the problems and difficulties which they will find in their daily lives. RESULTS: Due to lack of time, we could not evaluate the effectiveness of this booklet in people with Parkinson´s disease members of the Association Linares. Then we continue with the study of this booklet in the same population. CONCLUSIONS: It is necessary that these patients have enough knowledge to cope with the daily challenge that this disease presents, but mostly so that they can improve their quality of life which has been compromised by Parkinson's disease.
[EN] FACTUAL: The factual of this work is to bring Parkinson's disease to people who suffers this and their caregivers. Parkinson, an increasingly widespread chronic and progressive neurodegenerative disease in the society. Of which there is little reliable information that can be used by people who have just been diagnosed with this disease, in order to know what really happens to them as they will have to face. METHOD: Due to a series of interviews in Parkinson association in Linares, we have concluded that the information which possess these patients is very poor, so we decided to make a manual where it is explained what is the disease, the symptoms of this, treatments and most importantly to them, what they can do to meet the problems and difficulties which they will find in their daily lives. RESULTS: Due to lack of time, we could not evaluate the effectiveness of this booklet in people with Parkinson´s disease members of the Association Linares. Then we continue with the study of this booklet in the same population. CONCLUSIONS: It is necessary that these patients have enough knowledge to cope with the daily challenge that this disease presents, but mostly so that they can improve their quality of life which has been compromised by Parkinson's disease.